Noah was born with a congenital condition called schizencephaly. In his case bilateral. Due to the missing areas of his brain Noah suffers from uncontrollable seizures and several kinds. His biggest battle with seizures are gelastic and breakthrough clonic/ tonic. Noah like many kids with epilepsy rarely understands what is happening to him and is often scared when he finally comes back from an episode. His heart is pure and he is here to remind us we all have a very specific purpose in life.
Tricia Dennis
President we are R.A.R.E. Inc.
Rare awareness research and education For Schizencephaly and rare neurological disorders.
www.wearerare.org
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