Brycen is 7 years old he has Osteogenesis Imperfecta type 1 otherwise known as Brittle Bone Disease. He also suffers from adhd, ocd, odd, and depression. Brycen started breaking bones when he was 15 months old and ever since it seems about every 4 – 5 months he breaks a bone. Brycen broke his femur bone at 20 months old. Which caused it to bow as it healed. We just found out that there is a treatment for his bone disease. It’s called Pamidronate. It’s an 8s a I.v. Infusion that is done every 3 months and it’s for 3 days 4-6 hours a day. The infusion is supposed to help make the bones more dense. The doctor said that he will be doing this for the rest of his life. But when he is an adult it would only be needed once a year.
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DEC