Happy New Year from the Epilepsy Warriors Foundation! I would like to say thank you to all the families that gave me the privilege of featuring their children. Sharing the stories of your children this past year helped many families, people to see that each child with epilepsy has a story to tell. To show that epilepsy is different for each one of us and that no matter what the diagnosis of epilepsy our children have been given it does not and will never DEFINE who they are. It has been an honor to share your stories, children, and families with everyone and I hope that the year 2014 we see even more strides in the research, and treatments of this disease so that our children are that one step closer to crossing the “Bridge of Hope” to a cure. God Bless you all!
I am honored to introduce as our first featured child for January 2014 the beautiful and incredibly sweet Will Gillen!
Here is his story as told by his Mother: This is Will Gillen, 11 years old. Will has a rare seizure disorder called Lennox-Gastaut Syndrome, and experiences seizures on a daily basis. As a result, he has to wear a seizure helmet with a face bar on it full time to protect him from physical injury. Although, Will is completely nonverbal, he is very mobile! He’s a jumper, spinner, and will even at times, break out into a sprint! Every day Will reminds us of the miracle of life, and how to cherish every small “inchstone” he reaches. He is our hero!
DEC