My Warrior Princess…..Tori I never knew a child could teach an adult so much….until I had Tori.  Tori’s journey began on December 20, 2006 her birthday.  She came into this world fighting after she aspirated meconium at birth and could not breathe.   During this time Tori coded and then when she was revived, only had […]

Patrick is one of the most funny, loving, independent, energetic and endearing four-year-old boys that I know. He loves a thrill, has a mischievous smile and is happiest when he is running wild. When Patrick was an infant and toddler he had febrile seizures. It was stressful but we did not think too much of […]

Amanda’s journey has been a roller coaster, with great highs and treacherous lows. We’ve learned to truly appreciate the small victories in life and always celebrate the good moments. We started this journey when Amanda was 6 months old; 5 days before her first Christmas. Her first seizure occurred on the left side of the […]

Little Sydney Michaels had her first seizure just days before she turned three months old. That seizure lasted well over 20 minutes. Within weeks, her seizures rapidly increased in number, frequency, and length. Multiple drugs & combinations of drugs were attempted and failed. New seizure types continually emerged. No answers were given as to why […]

In January of 2002, I gave birth to my third child, a beautiful healthy baby girl, Leah. I was overjoyed with every milestone she was making, little did we know on Leah’s first birthday our world as we knew it would never be the same. While traveling on the turnpike, returning from an out of […]

Olivia Hope (Livy) is a eight year old twin who was born with a brain malformation that resulted in epilepsy and multiple disabilities.She is nonverbal and has many mental and physical challenges. The need for anti-epileptic medications has drastically diminished her ability to develop, therefore, she is completely reliant on her family for her care. […]

It started Friday, August 4th. His dad was watching him so when I picked him up he had a scraped knee. I didn’t think anything of it, he’s 5! I asked him about it, he said he fell not a big deal I thought. He was acting different that day, he wasn’t interested in swimming […]

Gabby was born June 27, 2008. She seemed like a typical infant to everyone but me. I had a strong feeling there was something not “wrong” with her but different. We didn’t realize her screaming for hours at a time and not keeping her milk in was because she was allergic to milk and soy. […]

My name is Angela and my son, Stryder, has been fighting epilepsy for several years. He is five now and his seizures are not controlled. Stryder’ epilepsy has affected every area of his life and yet he is always smiling. Stryder has been the Rochester Ronald McDonald Ambassador for their season of giving in 2011 […]