July 2015 Featured Child

Frankie started having seizures at six months old. His seizures grew stronger over time to where he would have drop to the floor tonic clonic and strong myclonical seizures. He has been diagnosed with Lennox-Gastaut syndrome which has made him severly developmentally delayed.

For those that do not know or may not have heard about Lennox-Gastaut Syndrome it is a severe form of epilepsy. Seizures usually begin before 4 years of age. Seizure types, which vary among patients, include tonic (stiffening ...

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June 2015 Featured Child

Parker had his first seizure February 2014 just before his 3rd birthday. He was at his great grandmother’s house and began seizing for no apparent reason. He was taken to children’s hospital, and they checked him out and sent us home that same night. About a week later he was at his 3rd birthday party, it was time for cake and as he walked up to his mom he dropped to the floor and began seizing. He was rushed again ...

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May 2015 Featured Child

“What doesn’t kill you makes you stronger.” My mother told me that long ago. I think it is Jonathan‘s mantra. When Jonathan was four years old a nurse made a mistake in his care following a tonsillectomy. He suffered a major hypoxic event: his lung had collapsed, his brain had swollen, and he was unresponsive. He was transferred to PICU where he was placed on a respirator. Things were bad and after four days, the doctors told us that Jonathan ...

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April 2015 Featured Child

Sarah started fourth grade like every other year and seemed to be excelling and then about 2 months into school her teacher started noticing that Sarah was having issues with focusing and remembering things and that she could tell it wasn’t on purpose. Of course we wondered at first if it was ADHD. This led us on a very long journey of miss-diagnosis and many doctors and tests including 3 MRI’s, 4 EEG’s, multiple times for lab work, sleep studies, ...

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March 2015 Featured Child

Jackson was born on January 18, 2011. After a year and a half of trying, and crying, and praying for a baby, pregnancy went smoothly, but delivery was traumatic for Jackson and mommy. He had torticollis, plagiocephaly and bracheocephaly. Jackson had physical therapy starting at 4 months. Then at 6 months began wearing a helmet. At 9 months the helmet came off and life rolled along.

Fast forward to the age of 3 and it started to appear that Jackson would ...

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February 2015 Featured Child

Bailey was born April 30, 2010, after a fantastic pregnancy and delivery. She was so happy, full of laughter and smiles. We could not be happier, she made our family complete. We had no idea what we were in for… Before Bailey was seven months old, she had her first seizure. It lasted about fifteen minutes, which seemed like an eternity. She had an EEG done about a month later and it was abnormal, I was hoping it was just ...

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January 2015 Featured Child

Brycen is 7 years old he has Osteogenesis Imperfecta type 1 otherwise known as Brittle Bone Disease. He also suffers from adhd, ocd, odd, and depression. Brycen started breaking bones when he was 15 months old and ever since it seems about every 4 – 5 months he breaks a bone. Brycen broke his femur bone at 20 months old. Which caused it to bow as it healed. We just found out that there is a treatment for his bone ...

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December 2014 Featured Child

Lainey is almost 15 months old and was born prematurely. She has been a mighty little fighter from the very beginning. It took months for her days home to exceed her days in the hospital! After months of testing, Lainey was diagnosed with partial seizure disorder and Todd’s Peresis, but her challenges have only made her work harder. Lainey adores and is adored by her big brother and two big sisters (who call her “Laineybug” ).

Her schedule of appointments and ...

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November 2014 Featured Child

This is 6 year old Mason. He has a form of epilepsy called Lennox-Gastaut Syndrome. His first seizure that we noticed happened when he was six months old. Since that time his treatments have included many different medicines, along with two years on the Ketogenic diet. His seizures today are daily, but “mild”- for which we remember to be grateful. Despite having global developmental delay, Mason learns and enjoys new things every single day. He loves music and light, and ...

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October 2014 Featured Child

Teagan (3years old) suffered her first seizure at just four hours old following two in utero strokes that caused damage to her frontal/parietal & occipital lobes from lack of oxygen (Hypoxic Ischemic Encephalopathy). She is the light of our lives and has since been diagnosed with mild Cerebral Palsy, Autism-moderate, Global developmental delay, bilateral hearing loss, strabismus exotropia (getting glasses soon) SPD and more! She is a fighter, survivor and an inspiration, she is a warrior!

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