December 2014 Featured Child

Lainey is almost 15 months old and was born prematurely. She has been a mighty little fighter from the very beginning. It took months for her days home to exceed her days in the hospital! After months of testing, Lainey was diagnosed with partial seizure disorder and Todd’s Peresis, but her challenges have only made her work harder. Lainey adores and is adored by her big brother and two big sisters (who call her “Laineybug” ).

Her schedule of appointments and ...

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November 2014 Featured Child

This is 6 year old Mason. He has a form of epilepsy called Lennox-Gastaut Syndrome. His first seizure that we noticed happened when he was six months old. Since that time his treatments have included many different medicines, along with two years on the Ketogenic diet. His seizures today are daily, but “mild”- for which we remember to be grateful. Despite having global developmental delay, Mason learns and enjoys new things every single day. He loves music and light, and ...

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October 2014 Featured Child

Teagan (3years old) suffered her first seizure at just four hours old following two in utero strokes that caused damage to her frontal/parietal & occipital lobes from lack of oxygen (Hypoxic Ischemic Encephalopathy). She is the light of our lives and has since been diagnosed with mild Cerebral Palsy, Autism-moderate, Global developmental delay, bilateral hearing loss, strabismus exotropia (getting glasses soon) SPD and more! She is a fighter, survivor and an inspiration, she is a warrior!

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September 2014 Featured Child

Noah was born with a congenital condition called schizencephaly. In his case bilateral. Due to the missing areas of his brain Noah suffers from uncontrollable seizures and several kinds. His biggest battle with seizures are gelastic and breakthrough clonic/ tonic. Noah like many kids with epilepsy rarely understands what is happening to him and is often scared when he finally comes back from an episode. His heart is pure and he is here to remind us we all have a ...

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August 2014 Featured Child

We have a very special child we are featuring this month James Fulkerson. James is our foundations “Face of Epilepsy” we chose to represent our Chicagoland families. On August 24th I am honored to give this little boy a Super Hero’s Birthday to help celebrate his 5th Birthday. James truly is a SUPER HERO! Please take a moment to read his journey it will move you and touch your hearts. I LOVE YOU SWEET JAMES. Thank you to Jeff and ...

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June 2014 Featured Child

Wyatt was diagnosed with Tuberous Sclerosis Complex. He was then diagnosed with complex partial seizures and a month later infantile spasms. Our Wyatt is a fighter. He has been through a lot in the last 9 months.  Our family does everything we can do to raise awareness for epilepsy and TSC. We hope to find a cure one day! No matter where life takes us we are a team, a strong team of family and friends who will always be ...

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May 2014 Featured Child

Blake was born in 2002 and was a happy-go-lucky kiddo with a great personality and just always went with the flow. He went deaf around 18 months old because of some fluid build-up in his ears, he learned lots of sign language since he could no longer talk. Blake had surgery for tubes around the age of 3 and started making sounds again and learned how to talk fairly quick but was reading within 7 months and progressed above average ...

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April 2014 Featured Child

Noah is a four-year-old from Plainfield and the son of Ryan and Jennifer Galloy. Noah is fighting a rare bacterial infection called, Atypical Mycobacterium Avium Complex (MAC). His body is plagued with such a rare disease due to the even more rare Immune Deficiency (IL-12 Beta 1 Receptor) he was born with. Noah is one of eight in the world with this bacterial infection and one of three in the US with the Immune Deficiency. His older brother, Brayden, is ...

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March 2014 Featured Child

Michael Stephens was born March 3, 2006 in Thomasville, Georgia as the little brother to Angel Stephens. He absolutely loves his Sister (Sissy). He has been a joy since he was born. At the age of six months he was diagnosed with severe asthma where he was treated at Shands Hospital in Gainesville, Florida. He was diagnosed with moderate to severe Autism in August of 2008. At that time Michael began aggressive therapies to give him a chance at an ...

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February 2014 Featured Child

Our sweet 5 year old, Greyson, was born a perfect 7 pounds and 10 ounces. We felt so blessed to have a healthy baby. That is, until 3 months of age, when he started to develop infantile spasms. Infantile spasms are a devastating type of seizure that can drastically harm brain function and are heart-wrenching to watch. After a myriad of diagnostic testing, including MRIs, EEGs, kidney ultrasound, vision exams, chest x-rays, and multiple blood draws, it was determined that ...

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