Wyatt is a rambunctious, smart, athletic 12 year old. He is full of energy and loves to play football and basketball is very good at both. He was diagnosed with ADHD when he was 6 and has been on medication for that since he was 7.

In July of 2014 Wyatt had his first seizure. I had no idea what was wrong he was playing a video game and became completely unresponsive. The first seizure there were no convulsions, he was just unresponsive with his eyes open.

You can imagine how terrifying that was! We called 911 and went to the ER where the Dr. told us it was a seizure and that a lot of kids have them while playing video games.

We had an immediate EEG which showed extensive seizure activity throughout the entire test, but more during the flashing light part. He was diagnosed with Photosensitive Epilepsy and prescribed Topamax.

Since then he has had 2 grand mal seizures with convulsions and one time that caused him to stop breathing during the seizure. This was Aug 3rd. The Dr increased his dosage of meds and there has not been a seizure since then.

We live everyday on high alert, just waiting, praying, and hoping that it will not happen again. After our last EEG on October 20th he drew a picture with this little caption It says “me half full not living life to full potential.” This sums it up for him for the last 14 months. There an entire page of activities he’s not allowed to do right now that he was doing before. My hope is that this is temporary. We are lucky compared to so many others with this terrible disease. It’s possible he could outgrow it because of the type of epilepsy it is. I hang on to this possibility for dear life, as I, like any other parent want my son to be happy and healthy.

My heart breaks for all the Moms, Dads, and kids trying to navigate their way through this journey.