Questions For Your Doctor

The following questions need to be answered:

• What kind of Epilepsy is it?
• Where in the Brain are the Seizures coming from?
• What can we Expect as far as Seizures?
• Are their changing types of Seizures based on Diagnosis?
• What is the outlook for my child?
• Can or Will my Child Outgrow this Epilepsy?
• What kind of Outcomes have you seen with my Child’s Type of Epilepsy?
• Does my Child need to be in an Epilepsy Monitoring Unit?
• Can you Recommend a Good and Reputable Epilepsy Monitoring Unit if needed?

Questions Regarding Diagnostic/Laboratory Testing

What exactly did the EEG show?

How often should my child have an EEG?

Is anymore Diagnostic Testing such as an MRI or VEEG required?

How often should we have Blood Work done if we are on Medications to check our Child’s liver
and or kidney function?

What is an EEG and What does it tell us?

What is a VEEG and what does it tell us? What are you specifically looking for and expect it to tell us?

What Other Testing is useful? Sleep Studies to check for Seizures while Sleeping?

Questions Regarding Medications

What Medications will my Child be on?
How do these Drugs Interact with one another?
What if any are the Side Effects of these Drugs?
What is the next step if the Medications do NOT control the Seizures?
Will the Medications affect my Child’s Development?
Will the Medications affect my Child’s School Performance?

Questions Regarding Daily Living

Do you recommend a Dietary Vitamin Regimen?
Will my Child be able to continue their currant lifestyle?
Are their any Activities that need to be avoided?
Is their anything that needs to be Modified?
Can you recommend any Parent Support Groups in the Area?
Are their any Child friendly books that can explain to Siblings what is going on?

Questions Regarding Emergencies

What should be done in an Emergency if my Child’s Seizures do NOT stop?
Do I need Emergency Medications on hand?
In an Emergency, What is the Chain of Command? Who do I call first after 911, Pediatrician, Neurologist/Epileptologist?
How do I REACH YOU in an Emergency?

PARENTS I HIGHLY RECOMMEND THAT ALL AND ANY PEOPLE YOU USE OR HIRE FOR BABYSITTERS/CAREGIVERS ARE CERTIFIED AND UP TO DATE IN CPR-MAKE IT MANDATORY!